It is with a very heavy heart that i must let you know that Logan's journey came to an end on March 7, 2015. He was asleep and peaceful and surrounded by us and friends and nurses who loved him.
He was admitted on January 27, 2015 with a fever. A week later he was sent to the picu because his stats were dropping enough to make everyone worried. 2 days later he had to be intubated and put on pain meds because his stomach was hurting him so bad he was crying out in pain. 2 days after that he was put on dialysis because he was not urinating. He was on dialysis for 10 days straight in the picu. He also was having another very severe rejection. He then left the picu and went to his normal floor. At this time we had a meeting with his team and were told there was nothing more they could do for him to help him. If they did anything it would be doing stuff to him instead of for him. We were told this on February 24, 2015. We started to make the most of our time with him and be there as much as possible. He kept his eyes closed a lot and would sleep a ton. We did activities with him, read to him, had his brother and sister there as often as possible. 11 days later on March 7,2015 his body gave out in the evening. We were prepared yet not prepared. The doctors had said he could pass away at any time up to a few months away. Knowing Logan, both my husband and I thought we had a few months with him. We started looking at getting family photos done, trying to get make a wish involved, setting up schedules for when one of us would be there with him, getting family in town so they could see him......then boom he left us. We all gave him hugs, kisses told him we love him and will forever miss him. We had his nurses come in and say their goodbyes. Those nurses loved Logan as if he was their own son. ( Another reason why I love Duke so very much) Then friends came back into his room with us and helped us clean the room up and bag and box everything up to take home. I honestly don't remember a lot of what happened. It was all a whirlwind of what was going on. I just remember standing in his room just blank as everyone else did everything. The nurses were washing his body up to get him nice and clean and covered. Friends took his stuff to our home and waited for us to come back home. We waited with Logan until decedent care came to finalize everything and we could say our final goodbyes. It was so very hard holding his head and hugging him for the very last time. I could not let go and I could not stop crying. Why in this world did this have to happen to my Logan. I would no longer hold his hand or hear him laugh or hear his sweet voice say I love you mommy.
It has been almost 6 weeks (today is April 17) Every emotion has run through me. Mostly sad and angry surface more than anything. I know everyone is different but that is what I am going through. The only way to describe what is going on in my head is a tornado. There is no rhyme or reason as to my thought process since he passed away. My head is a big jumble and I try to just take it one day at a time. I don't tell you this to scare you in anyway, but to let you know, at least in our situation, that there was a finality with HD and transplant. Transplant is not a cure.
Please do not hesitate to email me or try and find me on facebook. I will eventually get back to wanting to help spread the word about HD and transplant. Losing Logan I am sure will help me more than ever push forward into getting HD recognized like it should be.
To those who have sent messages on here I am sorry I did not get back to you right away. Since his passing I have not done a lot with this website or even checked it. I will start to get back into it and getting back to you.
He was admitted on January 27, 2015 with a fever. A week later he was sent to the picu because his stats were dropping enough to make everyone worried. 2 days later he had to be intubated and put on pain meds because his stomach was hurting him so bad he was crying out in pain. 2 days after that he was put on dialysis because he was not urinating. He was on dialysis for 10 days straight in the picu. He also was having another very severe rejection. He then left the picu and went to his normal floor. At this time we had a meeting with his team and were told there was nothing more they could do for him to help him. If they did anything it would be doing stuff to him instead of for him. We were told this on February 24, 2015. We started to make the most of our time with him and be there as much as possible. He kept his eyes closed a lot and would sleep a ton. We did activities with him, read to him, had his brother and sister there as often as possible. 11 days later on March 7,2015 his body gave out in the evening. We were prepared yet not prepared. The doctors had said he could pass away at any time up to a few months away. Knowing Logan, both my husband and I thought we had a few months with him. We started looking at getting family photos done, trying to get make a wish involved, setting up schedules for when one of us would be there with him, getting family in town so they could see him......then boom he left us. We all gave him hugs, kisses told him we love him and will forever miss him. We had his nurses come in and say their goodbyes. Those nurses loved Logan as if he was their own son. ( Another reason why I love Duke so very much) Then friends came back into his room with us and helped us clean the room up and bag and box everything up to take home. I honestly don't remember a lot of what happened. It was all a whirlwind of what was going on. I just remember standing in his room just blank as everyone else did everything. The nurses were washing his body up to get him nice and clean and covered. Friends took his stuff to our home and waited for us to come back home. We waited with Logan until decedent care came to finalize everything and we could say our final goodbyes. It was so very hard holding his head and hugging him for the very last time. I could not let go and I could not stop crying. Why in this world did this have to happen to my Logan. I would no longer hold his hand or hear him laugh or hear his sweet voice say I love you mommy.
It has been almost 6 weeks (today is April 17) Every emotion has run through me. Mostly sad and angry surface more than anything. I know everyone is different but that is what I am going through. The only way to describe what is going on in my head is a tornado. There is no rhyme or reason as to my thought process since he passed away. My head is a big jumble and I try to just take it one day at a time. I don't tell you this to scare you in anyway, but to let you know, at least in our situation, that there was a finality with HD and transplant. Transplant is not a cure.
Please do not hesitate to email me or try and find me on facebook. I will eventually get back to wanting to help spread the word about HD and transplant. Losing Logan I am sure will help me more than ever push forward into getting HD recognized like it should be.
To those who have sent messages on here I am sorry I did not get back to you right away. Since his passing I have not done a lot with this website or even checked it. I will start to get back into it and getting back to you.