The reality of HD can be very scary at first. But most cases are very regular and you can be in and out of the hospital with no problems and won't even know in the future. Some cases will have setbacks from time to time, which can be very frustrating. Then there are cases like my family's where the child will have the rarest kind of HD. With many complications, many setbacks and many delays in life.
   Some HD babies/kids will eventually need an organ transplant in order to survive. You can either get a small and large intestine transplant or you can get a liver/small intestine transplant.
   Transplant is of course very scary, but can also save the life of your precious baby. If transplant is an option you are thinking of, or if transplant is the only option left, you are not alone. We have gone through this. It is hard but you can and will get through it. I am including our sons story on here so you can read about what his and our challenges have been to maybe give you some insight.
   Another unfortunate reality of HD is that in some cases it isnt caught in time or that there are just too many complications and it takes the life of the child. This is a sad reality.
   Even though this disease is very common it is not well know in the public when you tell someone that your child has it. We have only ran into a handful of people who knew what it was. This can be a very terrifying disease and families go through so much. We should have just as much support out there and be in the public eye too.