SO I thought I would try and write a blog on here once a week. Of course right now our family is very busy with what seems like a million things but hey I can try. I thought it would be nice to let you know what our son Logan has been doing. He is doing great. Ok, bye. No just kidding. He is down to every 6 weeks with his doctor(he used to go every two weeks). He is down to 12 hours of formula at 65ml per hour. He was at 20, went down to 17 and is now down to 12. He is up to stage 3 of baby food that has the little chunks in it and is doing great with it. I did try the little puffs that literally just melt in their mouth and he wasnt too sure at first but took three of them. I would say by the end of the year he should actually be eating!!! Which for us is a huge accomplishment. He still is not walking yet, although that is partly my fault as since we have been super busy I forget to put his leg on him and get him to start standing, but my goal is also by the end of the year to get him walking. Fingers crossed. As of June he will be going to Chicago Childrens Memorial Hospital.
I am still in the process of trying to make up merchandise for HD Awareness along with Organ donor awareness and Transplant awareness. Not quite sure where I am going to get the time and money for it but