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Update

5/3/2011

1 Comment

 
Just wanted to start by updating everyone. Logan had come home the end of March after 6 months in the hospital because of a rejection to the transplant. He went back in about 2 weeks later. It was supposed to be a routine 24 hours stay for him that has turned ino a longer stay because of a blood stream ifection. We are hoping he can come home very soon though.
Also just want to say thank you to everyone who has looked at this site and is passing it on to take a look at this site. One of these days this disease will be in the public spotlight just like all of the others we hear about daily. I am currently in the process of creating some HD awareness stuff and once I have it done I will let you know so you can take a look.
Thank you again!!! It means the world to me to see people checking the site out and leaving me messages about their story or just to say thank you for creating the site.
1 Comment
Laura
6/17/2011 01:16:49 am

Thank you so much for this website and for trying to put information about this disease out there. My baby is in the hospital due to Long segment HD. He just had surgery and had his large intestine removed. Take care.

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    I am a stay at home mom of 3, one of whom was born with LSHD. I am just one person trying to get the word out there about this horrible disease.

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